http://www.sqlservercentral.com/blogs/brian_kelley/2006/04/26/when-life-intrudes/ Printed 2015/04/01 09:26AM
When life intrudes
2006/04/26I have MVP Raymond Lewallen in my list of blogs to follow. I read with great sadness the following blog post:
We lost a great would-be developer of the Lewallen family.
There is a link to the story of this little man's fight at the above link. Donation information
is also available. The family will use the donations to benefit the
level 3 NICU (Neo-natal Intensive Care Unit) and Aikman's end zone.
This story hits close to home because my wife faced some of the same
issues and concerns for our daughter, who turned 1 year old last month.
We were doing an ultrasound once a week and my wife was induced because
of polyhydramnios. It was a very nerve wracking time because there was
an anomaly noted in one of her ventricles in her brain. While she was
healthy when born, we still had to do
two ultrasounds to verify there wasn't a issue. The
last few months haven't been a cakewalk either because our daughter is
very small... she hasn't grown very much, but her head is larger than
normal. Initially it was attributed
to a condition known as renal tubular acidosis,
which can impair the effectiveness of the human growth hormone.
However, even after receiving daily medicine for that, she's still very
small for her age. The head size is my fault. I have a larger than
normal head and she inherited that from me (my boys also seem to have
larger than normal heads, but they've never been measured). She's been
poked, prodded, and stuck for blood more
times than I can count. She's been tested for cystic fibrosis. Thankfully that test came back negative. She's now being tested for celiac disease.
It may just be that she's small, as my wife's sister is short, my mom
is short (even by Japanese standards) and my aunt is even shorter than
But we're lucky. We have our daughter, along with two healthy boys,
aged 8 and 7. We can hold her. We can play with her. We can talk with
her and interact with her. She's a fireball of energy and loves hugs
She's into everything and makes her curious brothers look lethargic.
After reading a story like Drew's, it makes me realize how blessed we
are despite all the issues, the medical testing, etc., going on with
our daughter. As I taught the kids at church tonight, life isn't fair.
But still we must continue on. My prayers will be with the Lewallen